Many advocates believe it is offensive to talk about mourning a child’s diagnosis, as all children should be accepted and have gifts to offer the world…Honestly I don’t remember mourning his diagnosis as much as what else I mourned….

There’s an overabundance of joy in watching your lonely child play with their buddy in the fort they just built together or in sitting down side by side with their mom in person to laugh and share cheese and clink glasses. I know we can all do without that if we have to, we’ve done it for sure. But these simple things can also bring so much joy during tough times. So here’s how we are doing it:

Recently a friend I respect posted that they dislike when their FB friends make political posts….A lot of folks are infuriated with Facebook…It is because we are a differently wired family, that I don’t feel I have the luxury of rejecting Facebook. Likewise, because I am struggling with being American right now, I don’t feel I have luxury of avoiding politics where I socialize….

There’s an overabundance of joy in watching your lonely child play with their buddy in the fort they just built together or in sitting down side by side with their mom in person to laugh and share cheese and clink glasses. I know we can all do without that if we have to, we’ve done it for sure. But these simple things can also bring so much joy during tough times. So here’s how we are doing it: